47 quotes found
“Nobody can see pain. They have no frame of reference for pain that's happening to someone else. They can only see inactivity - which they interpret as laziness.”
“It has been said that life has treated me harshly; and sometimes I have complained in my heart because many pleasures of human experience have been withheld from meif much has been denied me, much,...”
“God's time is slow, patient, and kind and welcomes friendship; it is a way of being in the fullness of time that is not determined by productivity, success, or linear movements toward personal goal...”
“I've been so focused on state government, I haven't really focused much on the war in Iraq.”
“I am conscious of a soul-sense that lifts me above the narrow, cramping circumstances of my life. My physical limitations are forgotten- my world lies upward, the length and the breadth and the swe...”
“Whether someone is useful only matters if you value people by their use.”
“If the history of the last century taught us the dangers of empowering governments to determine genetic fitness (i.e., which person fits within the triangle, and who lives outside it), then the que...”
“Strange how knowing our story had no happy ending had freed us to live in the moment. We werent guy and girl. We werent damaged and terminal. We were just now.”
“The books my mother read and reread provided a broader, more adventurous world, and escape from the confines of her chronic illness. Her interior life was enriched even as her physical life contrac...”
“It is an awful thing to be betrayed by your body. And it's lonely, because you feel you can't talk about it. You feel it's something between you and the body. You feel it's a battle you will never ...”
“The only disability that I have, is that I'm human.”
“I pulled on the restraints, frustrated, hurting, and completely devastated. I could feel tears sliding down my skin, into my ears, and back over my scalp. Which told me that theyd cut off my hair, ...”
“A troubled life beats having no life at all”
“Sometimes, it is true, a sense of isolation enfolds me like a cold mist as I sit alone and wait at lifes shut gate. Beyond there is light, and music, and sweet companionship; but I may not enter. F...”
“The passion for such children contains no ego motive of anticipated reciprocity; one is choosing against, in the poet Richard Wilbur's phrase, 'loving things for reasons'. You find beauty and hope ...”
“Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support ...”
“The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.”
“In retrospect, it seems obvious that my research about parenting was also a means to subdue my anxieties about becoming a parent.... I grew up afraid of illness and disability, inclined to avert my...”
“But nobody writes fairy talesabout the ugly and poemsare not there for the brokenand I will never find myselfin the words of a hymnnor will any whispered prayerever say my name(which name, which me...”
“I cut off all my hair, cut awayat the soft curves of my clothinguntil I have edges once again,using my body like broken glassto slice at the world around me.I have to take something back,because I ...”
