“The partnership between nurses and families is based on mutual trust, and defining the boundaries and rules clearly will help everyone involved, especially your child.”

“An informed parent or caregiver becomes empowered, and empowerment can lead to the best care for our children.”

“With emotions ranging from fear, grief and anger to happiness and relief, the process of bringing home a child who needs in-home care can be complicated”

“Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support ...”

“Think of instinct as an unscientific, unquantifiable tool that can be used along with more concrete evaluations to make a well-rounded decision.”

“Even though our journey as parents of a medically fragile child began with emotional turmoil, it has since become a purposeful odyssey that brings meaning and depth to our lives. This is the road w...”

“Nobody can see pain. They have no frame of reference for pain that's happening to someone else. They can only see inactivity - which they interpret as laziness.”

“It has been said that life has treated me harshly; and sometimes I have complained in my heart because many pleasures of human experience have been withheld from meif much has been denied me, much,...”

“God's time is slow, patient, and kind and welcomes friendship; it is a way of being in the fullness of time that is not determined by productivity, success, or linear movements toward personal goal...”

“For the two of us, home isn't a place. It is a person. And we are finally home.”

“The vast and beautiful world is the home we share together.”

“I stood there a long while, staring at that tree. It looked so strongSo beautiful. Hurt right down the middleBut alive and well. Cee touched my shoulderLightly. Frank? Yes? Come on, brother. Let's ...”

“The nurse of full-grown souls is solitude.”