“An informed parent or caregiver becomes empowered, and empowerment can lead to the best care for our children.”

“With emotions ranging from fear, grief and anger to happiness and relief, the process of bringing home a child who needs in-home care can be complicated”

“Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support ...”

“Think of instinct as an unscientific, unquantifiable tool that can be used along with more concrete evaluations to make a well-rounded decision.”

“The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.”

“Even though our journey as parents of a medically fragile child began with emotional turmoil, it has since become a purposeful odyssey that brings meaning and depth to our lives. This is the road w...”

“If you want, you can be a child for the rest of your life and be a great LEARNER”

“The eternal child. - We think that play and fairy tales belong to childhood:how shortsighted that is! As though we would want at any time of life tolive without play and fairy tales! We give these ...”

“one of the best and the most painful things about time traveling has been the opportunity to see my mother alive.”

“work at our responsibility as parents as if everything in life counted on it, because in fact everything in life does count on it.”

“Happiness [is] only real when shared”

“That's what people do who love you. They put their arms around you and love you when you're not so lovable.”

“The nurse of full-grown souls is solitude.”